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BPAN - The Journey
Now the real work begins
Take a look at our NBIA and BPAN resource center to learn more about it, how it affects people with it, the latest research and upcoming events
Learn how you can help us in our personal journey and how you can support vital research needed to find a cure.
BPAN - Beta-propeller Protein-associated Neurodegeneration - what a mouthful. WDR45? Never heard of it?
The reality of BPAN sets in – it is no longer a foreign term. My husband can barely get through a medical summary without tearing up, whereas I am already armed with ...
Eva has been blessed since birth with two incredibly loving big sisters, Ella, 9 soon-to-be 10 and Emma 8.
Learn about easy ways you can help!