Support is available. You are not alone!
Other parents have also shared their stories with NBIA. Hearing each other's journeys can be comforting in knowing we aren't alone and can support each other as we seek the best care and a cure for our loved ones.
"The video shows some pictures of him throughout his life before his diagnosis and after. He is one of 3 males in the world with it and there is no cure."
“Jennifer and Brian Greene’s 3 year yold daughter can walk on her own, has never spoken a single word, and has sever cognitive and developmental delays. Now we are fighting for her life…”