Between summer traveling, doctors appointments, back-to-school preps, a hurricane and the holidays - to say I have been busy the last several months would be an understatement. Much of my time has also been spent on my passion project, a BPAN Website devoted to increasing BPAN Awareness and helping support families who care for loved-ones living with this devastating and life-limiting condition.
After months of toying around as a "want-to-be-web designer", I can now finally say that we have finally launched bpanwarriors.org.
Thank you to the BPAN Warrior Community for making this possible. Your support has been a life-line for me and our entire family over the past 8 months. Let's make great things happen in 2018!