HOW CAN I HELP?
Helping us by spreading the word so that more people know about NBIA and BPAN is a great way to support us. Please follow us on Facebook and share our fundraising efforts. If you are able to donate to research, any amount can help further the needed research to find a cure.
MAKE A DONATION
The NBIA Disorders Association relies on the generosity of families, friends and the community for support. Your gifts help to support families affected by Neurodegeneration with Brain Iron Accumulation, educate the public about these rare disorders, and advance, monitor and support research through our research grants program. A key part of our mission is to find a cure for NBIA.
CELEBRATE WITH US
For friends and family who prefer to make a donation to Eva's long term care, you may do so by contributing to her ABLE account. An ABLE United account offers Floridians with disabilities a tax-free way to save while maintaining government benefits. Funds may be spent on Qualified Disability Expenses, as defined by federal law and the earnings on the money withdrawn are tax-free. The money in this account is specifically for expenses such as transportation, assistive technology and related services, health, prevention and wellness, financial management and legal fees, and basic living expenses which may not be covered through insurance and other government benefits.
Do you have a specific skill that you think could help our cause? Fill out the form at the bottom of the page and let us know how you think you could help us increase awareness and fundraising.
SUPPORT EVA AND OUR FAMILY WHILE HAVING FUN!
When you shop at AmazonSmile, Amazon will donate to BPAN Warriors when you use this link and select them as the charity of your choice. Support us every time you shop.
Learn more about the launch of and our local awareness campaign. See the amazing photographs from our Rare Disease Day 2018 Photo Gallery.